|The Yummy Mummy Club’s Erica Ehm and Dr. Tiffany Chow|
A couple of months ago I was invited to The Yummy Mummy Club event for The Memory Clinic. The Memory Clinic by Doctor Tiffany Chow, published by Penguin Books, was of particular interest to me because of the health care journey we have been on with my mother. Chow is one of the esteemed women of Baycrest, a world-renowned retirement home facility in Toronto that specializes in compassionate care for those struggling with dementia. I was thrilled to visit the facility and fairly wowed by the book, as well as the company I was in – many Yummy Mummy Club fans and members and people I know and follow on social media, but had no clue they were also struggling with a loved one diagnosed with Alzheimer’s Disease or dementia.
In light of demographic trends (the silver tsunami which clearly indicates we are nowhere near ready for the coming bubble of seniors and the demands they will place on the health care system in Canada) and the horrific headlines happening in Toronto right now, I wanted to take a minute to re-examine what Chow said during the talk earlier this year. Recently, in Toronto, a senior resident at the Wexford was killed by another resident.
The Memory Clinic is a useful resource for those working in the field, or caring for a relative with dementia or Alzheimer’s Disease, but what really struck me afterwards, during the open discussion, was Chow’s vision for the future of dementia care facilities. For a few moments she painted a picture of what her ideal dementia care facility would look like if she had control over design.
When my brother and I were searching through the endless numbers of retirement homes, longterm care facilities and locked dementia care wards, it was overwhelming. First of all the prices are incredibly outrageous. We toured buildings that ranged from $2,900 per month to over $5,000 each month. There were cottage style dementia wards, and locked clinical institutional facilities, even some entirely clinical oppressive locked units that seemed inhumane. Some had a Montessori approach for seniors. One, that we tried to place our mother in during a period deemed respite, was a total nightmare of inefficient supports that may have triggered an extreme mental health episode, and clearly resulted in her running from the facility. That horrific summer ended at London Health Sciences Centre when police offered to drive my senior citizen mother to ER. That particular facility seemed to focus on Bingos and entertainment activities when they should have been seeking out a higher level of dementia care training for all workers.
In recent days, in Toronto, headline news has centred on a few stories of residents inside nursing homes becoming violent. The Toronto Star also featured the story of an older man currently stuck in hospital and deemed violent, whose care was in conflict because his wife doesn’t want him medicated. Staffers and medical personnel argued he is violent and must be medicated and moved. Every six months or so a similar news item catches people’s interests and hits the court system. I cringe – every time. Why? Because neurobehavioral issues and diseases are far too often misunderstood and mismanaged. Just like ADHD, autism, FASD, and many neurological disorders, diseases, or brain injuries, people with dementia and Alzheimer’s Disease deserve compassionate care and support. Many disorders stemming from neurological reasons are characterized by memory loss and difficulty regulating emotions. There is little to no reason for violence to happen in nursing homes if care is managed properly, a kind calm environment is provided and a proactive, respectful, approach to care maintained. Violence inside our nursing homes and retirement homes in Ontario, rarely occurs in a vacuum.
If our facilities that care for our aging parents were all built properly, if all staffers were trained in compassionate care and behavioural technique that manages outbursts, anticipates needs and acts in a proactive manner, there should not be any more headlines reading Nursing Home Patient Killed by Violent Resident.
Dr. Chow’s ideal dementia care facility would have:
abundant nursing stations,
a lot of glass,
a sense of community,
sprawling and winding corridors that created a sense of flow and encouraged movement,
multi-media on the walls.
Also important that a facility looks after the interests of the whole family.
Her other tips: selflessness comes from taking care of yourself.
A Montessori approach for seniors is beneficial for many.
Bring something positive into the room.
Don’t get into a fight unless it’s really worth it.
Family events can still be every bit as important to those with dementia and Alz. but you may need to find a way to do them in a smaller way, or do them with Grandma in one room and small numbers of the grandchildren coming in to visit at a time to trim the chaos and noise.
Chow also noted there is still need for locked dementia care facilities. But, as a daughter of someone now accessing this longterm care in Ontario, I can see so many ways we are still failing as a province. All staffers should be trained in basic skills we have had to learn to help manage our mother. De-escalating a patient is not optional and knowing the skills is not optional either.
The Memory Clinic by Tiffany Chow, Penguin Books, Viking imprint, 2013, Toronto, $32.00, 263 pages.
I am giving one copy away also to one Canadian reader. Follow the instructions to win.